Welcome!
Welcome to my blog about my journey with Parkinson’s. The original blog was on instagram, which I still post on too.
Small Steps
The first (and really crucial) step for next year’s fundraiser has been completed and I’ve entered the South Downs Way 50 miler. Only another three entries to go. Oh, and running them of course (lots of small steps). 50 miles, 4 times. It’s gradually dawning on me that I must be slightly weird – although I prefer “eccentric”. To quote Bernard Woolley from “Yes Minister”: “That’s one of those irregular verbs isn’t it. I have an independent mind, you are eccentric, he is round the twist”. I’d better start training soon (and the Strava updates will be linked to the fundraising page which can be found in my bio).
After a lifetime of using my calculator left handed, I’ve got to learn to be dextrous (rather than sinister) otherwise I make too many errors – not good for an accountant. No comments about the age of the calculator thanks, although it does give me a good giggle when people borrow it and stare blankly at the keys trying to work out what to press.
The room where it happens
Trip 7 (out of 10) to the UCLH research facility, which by a strange quirk of fate is two floors above the ISEH who investigated my “trolley leg” and came to the conclusion that it was neurological. So I know the building well!
London is a lot busier now – which also means more building work, more noise and more rubbish. I miss the peace of the last two years.
Three more visits left until my participation in this trial ends but as they are still recruiting guinea pigs it will be a while before the outcome is known – at least two years as that is the length of the trial, let alone collating the results. Standard for medical research, unfortunately.
One important step has been taken towards next year’s fundraising epic as I’ve entered the South Downs Way 50. This will be the first of four 50 milers and takes place on 8th April 2023. I’d better start training for it… (Fundraising link is in the main menu).