Lab rat diary week 48
48 weeks already! It means I’m halfway through and the end is in sight.
I’m now stuck (literally) with a motion tracker on the base of my spine for a week together a mobile phone for some voice and movement tests three times a day.
All to see if repurposed diabetes medicine will help slow the progression.
As the end of the trial gets nearer I’ll be digging through the upcoming research to see if there’s anything that I fit (sometimes the entry requirements are for those with more severe symptoms – give it time and I’ll qualify 🤪🤣) and that I can do without impacting too heavily on the family.
Different sort of lab rat today
When I was first diagnosed I signed up for a study which tracks the development of Parkinson’s to help with future studies of the disease. Covid interfered with the follow up visits. Today was an MRI scan along with lots of cognitive and movement tests. My brain (what’s left of it) hurts. Lots of lists of numbers (with me repeating, re-ordering and reversing), words, images, colours and blood tests too.
They videoed my movement which included foot tapping (like a bass drum) which illustrated that the disease is progressing as my left foot could barely move after a few seconds. So bang goes any chance of me as a drummer…
(Yep, Parkinson’s sucks)
Next week I’m back again for the next drug trial update, so more tests. Hopefully it will help for the future.
#parkinsons #puckfarkinsons #parkinsonsawareness #cureparkinsonstrust #parkinsonsuk #danceforpd
#parkinsonssucks
#parkinsonsdisease